You know those days when one minor schedule change can throw off your entire day. I had one of those days. I will explain in a minute. The majority of my day went really smooth. Kids were in a good mood and the Taconic Developmental Disabilities Service Office came to my house to discuss my son's eligibility and fill out all necessary forms. This is a tedious process but necessary. I am not sure what the outcome will be but it seemed to look positive. It was an hour meeting that seemed to be me answering a ton of familiar questions. She also explained the services that they help to implement. They included but were not limited to Respite care, Behavioral specialist, Medicaid waiver and a service coordinator. The Medicaid waiver makes it possible for some funding for therapies as well as attending certain conferences at no cost. It gave me a feeling of relief that maybe my advocating is doing something.
This might not seem like a big deal but I feel like in order for you to fully understand I must explain what this is for my family. Once a week Charlie goes to the Stables and has Physical/Occupational therapy while riding the horse. This activity also is helping him socially and emotionally as it prompts him to make requests verbally and also teaches him to follow directions. It also allows me some much needed time with my daughter one on one. I like to say it grounds our whole family with a little bit of tranquility. It is a 45 minute drive to therapy and he usually has a rough drive there but is really mellow going home as long as he gets a snack and drink on the way home. He seems to have gotten this misconception that if we go in the car we need to eat and drink. Mommy is not liking this thought, or should we say the car does not agree with it. LOL.. We drove there and went into the stables and his therapist was not there. Mind you as I said the ride to therapy is far from a pleasent one but once he is around the horses he is a different little boy. I called her and she said, "I sent you an email." Why not cal, she wasn't canceling due to being sick, she was cancelling cause the weather was not supposed to be good. Why not call and let me know? Well, Needless to say my son threw himself down on the ground and was very upset. After about a half hour I had him pretty calm. I suggested that he see the other horses and give them hugs because they were lonely. This seemed to work, until we got in the car. Then he was hungry and thirsty and so I told him that we could stop at Benny's Pizza and get a slice. We ate there and then went home. Krystal finished her homework although she was not happy about doing it. Geez... I am not always happy to do things I have to do. I guess the positive is that it got done. 
When my daughter got home from school she handed me a test that she received a 56 on. I looked at the test and it was absolutely easy work. I am not trying to demean her but the answers were on the graphs and she understood the work. Trust me, I checked. To make it so much better it was an open book test and the teacher wrote a note stating that she completed the test in ten minutes and didn't even use her cheat sheet. Wait, It gets better, She didn't even complete the cheat sheet!!! Oh my, I was so mad!!! I had to sign this test and send it back to school. I had to take a minute to breathe and then I told her that she needed to redo the test before I would send it back to the teacher. She got so mad and she crinkled it and sat down to finish it. I had to bring my son to Equine Therapy so we packed up and left.
This might not seem like a big deal but I feel like in order for you to fully understand I must explain what this is for my family. Once a week Charlie goes to the Stables and has Physical/Occupational therapy while riding the horse. This activity also is helping him socially and emotionally as it prompts him to make requests verbally and also teaches him to follow directions. It also allows me some much needed time with my daughter one on one. I like to say it grounds our whole family with a little bit of tranquility. It is a 45 minute drive to therapy and he usually has a rough drive there but is really mellow going home as long as he gets a snack and drink on the way home. He seems to have gotten this misconception that if we go in the car we need to eat and drink. Mommy is not liking this thought, or should we say the car does not agree with it. LOL.. We drove there and went into the stables and his therapist was not there. Mind you as I said the ride to therapy is far from a pleasent one but once he is around the horses he is a different little boy. I called her and she said, "I sent you an email." Why not cal, she wasn't canceling due to being sick, she was cancelling cause the weather was not supposed to be good. Why not call and let me know? Well, Needless to say my son threw himself down on the ground and was very upset. After about a half hour I had him pretty calm. I suggested that he see the other horses and give them hugs because they were lonely. This seemed to work, until we got in the car. Then he was hungry and thirsty and so I told him that we could stop at Benny's Pizza and get a slice. We ate there and then went home. Krystal finished her homework although she was not happy about doing it. Geez... I am not always happy to do things I have to do. I guess the positive is that it got done. Curt was coming back from Florida and I needed to pick him up. He had been gone for a week and it was going to be nice to see him. Curt called earlier to tell me his flight had been delayed an hour so I wasn't sure what time to expect him so I was waiting to hear from him. When he called I had already arranged for the kids to be able to stay home but for some reason Charlie would not go to sleep so.. load up the car again and he was asleep within a block. It really is amazing how much havoc one change in schedule can cause. He was so upset over missing Equine that it was so much harder to do anything else. I even use a timer to transition but I am convinced that there are some things you just cannot prepare or predict for our children.
1 comment:
Mmmm, I've had days like that. The school did that to us several times last year either telling us there was a major event 4 hours before the even or forgetting to cancel and event until we showed up for it.
Post a Comment