Wednesday, November 30, 2011

Wordless-ish Wednesday

11/30/2011 0 Comments
 My Chucky Cheese may drive me completely insane but, He has such an adorable smile. Well, He has been being difficult and not wanting to shower, bathe, brush his teeth or take his vitamins. So, I have to be creative. C.C. has Gummie Fish vitamins and he talks to them.

So.. as he pops them in his mouth I can shout out in an strange voice,"Ouch, thats my ear!!" He thinks it is so funny and was cracking up!! It is great to see him laugh.
He goes to bite the fish












Black and White Wednesday

Tuesday, November 29, 2011

Just a Thought for Pour Your Heart Out

11/29/2011 0 Comments

The holidays are here and that can be really hard. It is overwhelming for me as a parent so I can't imagine how my son perceives it. I know the pain that hits your heart when a child you love so much seems so far away. I know what it feels like to get them a present you know they would love and not even have the recognition of a smile or hug. I know because I live with it everyday and in the begining I was just like all of the outsiders in my life. They don't live it and understand it. They haven't been around it long enough and I can understand their feelings.

While I can understand it I do have to say that in no way does that condone shunning a child. They do have feeling but it is harder for them to explain them. They are happy with the spinning top that I am sure he will play with for hours nonstop. Please take the time to enter into their zone. It may be easier for them to let you in. Try taking them to a quiet place and show them how to use their new toy. Try to join them in however they want to play. Basically, Just try!!!

Here is a poem that someone posted on Facebook and I thought it was fitting.


Autism Night Before Christmas 

by Cindy Waeltermann

Twas the Night Before Christmas
And all through the house
The creatures were stirring
... Yes, even the mouse

We tried melatonin
And gave a hot bath
But the holiday jitters
They always distract

The children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN head

Did I get the right gift
The right color
And style
Would there be a tantrum
Or even, maybe, a smile?

Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.

“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attack

We smile and nod
Because we know deep inside
The argument is moot
Let them all take a side

We know what it’s like
To live with the spectrum
The struggles and triumphs
Achievements, regressions…

But what they don’t know
And what they don’t see
Is the joy that we feel
Over simplicity

He said “hello”
He ate something green!
He told his first lie!
He did not cause a scene!

He peed on the potty
Who cares if he’s ten,
He stopped saying the same thing
Again and again!

Others don't realize
Just how we can cope
How we bravely hang on
A the end of our rope

But what they don’t see
Is the joy we can’t hide
When our children with autism
Make the tiniest stride

We may look at others
Without the problems we face
With jealousy, hatred
Or even distaste,

But what they don’t know
Nor sometimes do we
Is that children with autism
Bring simplicity.

We don’t get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try hard every day
That they make us proud
More than words can say.

They work even harder
Than you or I
To achieve something small
To reach a star in the sky

So to those who don’t get it
Or can’t get a clue
Take a walk in my shoes
And I’ll assure you

That even 10 minutes
Into the walk
You’ll look at me
With respect, even shock.

You will realize
What it is I go through
And the next time you judge
I can assure you

That you won’t say a thing
You’ll be quiet and learn,
Like the years that I did
When the tables were turned.


Chewlery and Chucky Cheese

11/29/2011 0 Comments
He is picking his skin in this picture
I gave him the Chewlery to try to redirect him and.......
It worked!!!

 Skin Picking is one of my little man's stims and I cannot seem to stop him from doing it. They say it is sensory related and he also chews on his fingers.










I have been contemplating getting him some Chewlery for quite a while now but my finances are not wonderful and they cost 18.00 a piece.

I finally broke and bought him one. I got the yellow heart because he loves the color orange. I was hoping this would encourage him. I was wrong.






Geez I can't even count the number of times I am wrong with this child. He saw the business card and wants the circle. A red circle at that and they don't make red circles. I am sure he would like the black circle but I have to wait to buy one cause I am pretty broke. So, one more sensory toy that doesn't work. The only thing about it that does work is he uses it but won't leave the house with it. I am just wondering when I will get it right.

Chewlery can be bought online @ www.kidcompanions.com









Sunday, November 27, 2011

Feature Guest Blogger Needs Help

11/27/2011 0 Comments

Motherhood, Giftedness, Aspergers: Mission Impossible

This might be a long one, friends.  Please be patient with me.  I've got much on my mind.  I am fighting a battle with myself and I could use some advice and support.
I’ve talked about giftedness on this blog many times and most of you are aware that both of my children are extremely gifted.  Having gifted children can be challenging but I have to admit, they blow my mind every single day and I know just how blessed I am.  But sometimes, their giftedness is confusing and sometimes it feels like more of a curse.
Such is the case with The Professor.


As many might already know, The Professor is a real scatter-brain.  He has zero organizational skills, he doesn’t excel so much socially and I struggle to teach him the skills he needs outside of his education. Lately, I’ve got new worries on my heart.

Last summer, I took The Professor to a psychiatrist.  I think she was a psychiatrist.  She was meant to be a counselor.  I was concerned because I felt like I was not succeeding in teaching him the social norms and emotional coping skills he needed and I needed guidance.  I wasn’t looking for any kind of diagnosis because in fact, I didn’t think anything was necessarily wrong. I simply believed that my gifted child was really struggling emotionally and socially and I knew that I was reaching the end of my patience and ability to teach him.

He has been evaluated by at least 6 others prior to this because I thought he was struggling with ADD or ADHD but all 6 didn’t see it.  They said that he was simply a very gifted little boy and this was par for the course.  My pediatrician has said the same thing to me several times.
But this time, after 3 sessions, the psychiatrist called me into the room and said that my job should not be this hard.  She thought The Professor had many of the signs of Aspergers.
I know lots of parents with Aspergers children.  I know lots of parents with Autistic children too.  Many of my favorite bloggers face these challenges every day!  But for me, I was completely lost when she said this.  My heart was racing, my head was spinning.  I was racking my brain looking for the signs that must have been there long ago.  I was struggling with the fact that she had only seen him 3 times.  My pediatrician has seen this child hundreds of times and swears there is nothing wrong with this kid!  And more than anything else, I was struggling with bring this issue to The Husband, whom I knew would not be okay with this.

I was SO right about The Husband.  His reaction to this was significantly less than supportive.  I had doubts myself, and big ones, so eventually, the issue simply went away.  I pulled him from counseling and we went about our happy lives as though the word “Aspergers” had never been uttered. know Aspergers isn’t a bad thing.  I know it isn’t something that can be medicated.  I know that it just requires a new understanding of the way my son thinks and a lot more patience than I have had in the past.  I know we don’t even need the diagnosis to change the way we handle situations with him.  But I also know, after some research, that gifted children often struggle in the same areas as Aspergers.  And I’ve read that gifted children are often misdiagnosed as Aspergers and vice versa.  It’s like playing Russian Roulette with my child’s psychology! Very confusing. So eventually, we dropped the whole issue and carried on.  


Occasionally, I would see The Professor do something that made me think “Aspergers!”, or he would melt down over something that seemed so insignificant and I would mentally replay that day in the counselors office and worry quietly to myself.  But I never spoke those concerns out loud and once whatever incident that spurred the thoughts passed, I was over thinking about it.  Until recently.
Recently, I find that I am really struggling with parenting The Professor.  I am concerned because I feel like I am seeing signs of depression in him.  He can’t sleep (which is nothing new on it’s own and a trait of a gifted child) but then once he falls asleep, he has begun waking in the middle of the night and complaining that he cannot go back to sleep.  The boy slept maybe 6 hours in three days recently and I had to send him to bed with no television or books to read for two days in a row just to ensure that he got some rest because the poor kid looked like hell.  He still has regular #2 accidents, which are both disgusting and frustrating for me, and I don’t handle the incidents very well because he is nearly 10 years old! I thought he was being lazy but discipline isn’t working and neither are reminders.  There HAS to be something wrong with that.  But more disturbing than any of the above, is his attitude about both himself and the world in general.  He has become very negative.  The boy is miserable.  He has a very low opinion of himself and I can’t figure out why.  No matter how many times I tell this kid that he is spectacular, awesome – amazing, he still thinks he is too small and not good enough. 

It seems like an issue a 9 year old should not be struggling with but it’s been said that the gifted are often at a greater risk for depression even at this young age.   He has become very picky about the foods he eats, preferring to eat waffles with nothing else on them, shying away from mayonnaise or butter, complaining that certain foods make him want to hurl and drinking only specific juices.  He doesn’t even like the sugar loaded cereals he has always loved in the past.  And he’s becoming aggressive.  This is a concern because every little thing can set him off.  If he spills his milk, he might jump up screaming and try to tip the table over and for the past few weeks he has even raised his hand to me a couple times.  This is not a discipline problem.  It can’t be! You can only discipline so many times before you start seeing that this child just isn’t learning anything from it!  Furthermore, he doesn’t like hugs anymore.  When he does hug me he does so with his arms, but his ass and the rest of his body never come even close to touching me.  I have to physically move his body and guide him to giving me a “real hug”.  Would you be worried?

My girlfriend says I talk to much, explain to much, allow him to argue with me too much.  But not talking results in a longer melt down and the result is always the same.  The behavior is repeated again and again and I’m tired of disciplining while quietly worrying over whether there is something else going on.  My gut is torn on this issue so I can’t rely on that.  On a good day, I see a gifted child.  But I gotta admit there are few of those anymore and on a bad day, I am sure there is something else going on.  There is one place where my gut is not torn.  I cannot simply stop talking to this child.  I cannot lay down the law and believe that he is getting it.  He isn’t getting it.  And I don’t, in my heart, believe that he is playing me.  I know some others believe that, but I know my son and he is not playing me.

I am taking him to my pediatrician.  I am not going there with any specific concern.  I am going there asking him to spend some time with The Professor and assure me that he is developmentally okay.  I am going to tell him the behaviors that are concerning me as well, but I will not walk into his office asking if my son is Aspergers.  I trust that if the signs are there and I am bringing the other issues to the attention of the pediatrician, he will see it.  I really trust my pediatrician.  He has never ever given me any reason not to.

I could really use my Aspergers parents out there to shed some light on this subject for me.  I am hoping that because The Husband trusts our pediatrician, if this is what the pediatrician comes up with, he will at least give it a chance.  If not, I can always just change my parenting style and wait for him to see it.  His relationship with The Professor has been faltering lately as well because he is fed up with the behavior.  Eventually, he has to see that everything we have done thus far simply isn’t working and accept that there may be another explanation for all the behavior that The Professor exhibits.

I don’t have the money to go buy books on this subject right now, but if there is something that you want to recommend, please go ahead.  I’m even open to offers to mail me a book if you think it will help.  I could really use some guidance and support here, so please, from one parent to another, Help Me.

Signed, If This Is Motherhood

Saturday, November 26, 2011

Favorite Shot of the Week

11/26/2011 1 Comments
Chucky spent most of his time under the table with my laptop as I was cooking the big meal.
 The whole bunch including my niece and nephew who joined us for our big meal. I had to call Chucky in to take the pic.
 Buddy loves to be silly!!
Chucky had to eat at his own table with mommy. He was overstimulated.

 Sweet Potatoes are Chucky's favorite part of the whole meal.
Then Princess had a sleepover with her bestie!! They had some fun with Chocolate whipped cream.













Pardon the quality of the photos. I didn't dare pull my camera out so I used a point and shoot amidst all of the havoc.


and then, she {snapped}



Friday, November 25, 2011

Ever Want to Tear Someone's Hair Out??

11/25/2011 1 Comments
Ever go shopping and have your child completely lose their mind? Sometimes they scream and kick, some days they are stimming all day and others they are on the floor banging their heads. Ugh... Sometimes I wonder why I even attempt to bring him with me. I mean it is predetermined that he will have a meltdown. Something will upset him and he will not be able to control himself. I know this. Damn the child is 5 yrs old. I should know better but I don't.

The other day I went shopping for Thanksgiving. I had to bring Chucky with me. Joy!!! Well I figured I had it all together cause I had a list and knew just what I needed. Nope!!! Didn't happen at all. My whole shopping trip was a complete nightmare. I swear it could be the ultimate horror film.

It started getting the produce, at which time I forgot the apples. I didn't even write it on my list. Sweet potatoes substituted that error. But I ensued on my journey to complete my shopping list. I got everything I needed except the dinner rolls which were on sale. Problem was that they were completely out. I asked a manager who said that they were substituting them for the Freihofer's brown and serve. I thought great deal and I will have to keep an eye when I go through the checkout.

It was at that moment I went to glance at Chucky and he was gone. He disappeared in a matter of seconds. My heart dropped fast and hard. I was calling for him and must have looked pretty frantic as an older woman approached me with her hand on my shoulder saying she saw a little boy over by the frozen pies. A slight sigh of relief as I rushed over and saw him spinning around a rack of stuffed bears and clothes. I say a slight sigh because in a matter of minutes the whole scheme played out in slow motion. I tried to call him over to me as I was walking over to him but before I got too close the phone rang and the rack started tipping. He was not even acknowledging me. OMG!!

This rack was taller than me and contained a lot of merchandise supporting the local school. There were other shoppers right next to the rack and I couldn't even get my son's attention. Again, it happened so fast although I was seeing it in slow motion. The rack tipping and then the lady standing next to the rack jumped backwards. The rack went crash and my son was standing there flapping his hands and jumping up and down. I know I should have felt immense relief. He wasn't hurt and I could visibly see him. But.. I wasn't!! I was overwhelmed and embarrassed. I had so many emotions going through my head that I couldn't feel anything. I was shocked.

An employee helped us clean it all up as other shoppers stood gawking at us. I can just imagine what was going through their heads and some of the facial looks should have gotten smacked off their faces. Well, I went immediately to the checkout. But on my way there was a display of stuffed animals. Oh boy It is my lucky day!!! Chucky really liked them. I told him he couldn't have a damn stuffie tonight. He screamed but I want a damn stuffie!!! Uh Oh... so I convinced him that the damn giraffe would be happier with his friends and rushed to the checkout before he destroy anything else, including my integrity.

He was really bad through the register and I was blessed to be in front of one of the gawking customers from the rack incident. At that point I said loud enough for him to hear me that I had to rush through this to get my son out of the store because he had Autism and was having a very difficult time. I am not sure what is worse, having people gawk and stare with dirty looks or seeing the pity look that took over his face the second he heard the words Autism. I just wanted to get out of the store, so badly that I totally forgot to check the prices of the four Freihofer's rolls I was buying. (which by the way I paid full price for)

Finally, We can leave this god forsaken store!!! I am trying to rush out the door but I had Chucky's hand and so we got to the outside doors and it was pouring. Ugh.. I tried to find my keys dropping Chucky's hand briefly at which time he bolts for the outdoors. Traffic and disaster was all I could think as I grabbed the back of his coat pulling him back to me. FUCK!!! My broken nail snapped backwards and all I could say was FUCK!!! I yelled, Why can't you stop!!! Fuck that hurt. Jesus child, can you please stop fucking with me. Ugh.. deep breathe and as I look up I see another bystander with her mouth dropped and looking at my child as if to say,"aww... poor baby. Your mother is so mean!!!" Now, She didnt say that nor would she have had a chance because I snapped. I screamed at her "Stare, feel bad for him, call CPS!! I don't fuckin care. I'd like to see you live with him for a week and I picked him up and rushed to the car struggling with a grocery cart in the pouring rain.

Did the poor bystander deserve that?? NO!! Absolutely not, but there are many things that I don't deserve either. There are many things that my child doesn't deserve and after that trip I just snapped. Now, just in case by some miracle this person reads my blog, I do sincerely apologize for my temporary insanity. I also hope that this will enlighten many about what many families deal with in a simple grocery trip and why we may at times seem short tempered.

Turkey Everyday!!!!

11/25/2011 0 Comments
Turkey contains a natural sleep aid. L-tryptophan, an essential amino acid with a documented sleep inducing effect. But, the truth of the sleep induction is actually a combination. But... I am going to put it to the test. I think!!! I want to increase the turkey we eat at home. Hmm... Turkey for breakfast, lunch and dinner!!! Yes, We may get sick of Turkey but....we may also get some much needed sleep!! Why and what has made me consider this??  Chucky has sleep issues. Buddy has them too but his are very mild compared to my Chucky. Both of my boys take Meletonin at bed. Usually Chucky is asleep by 8:30 and wakes around 6 am. There are times that it just doesn't work. Those times I am looking at very late and sleep deprived evenings. Ugh!!!


We had a very large meal with lots of different foods. Chucky's favorite is sweet potatoes. Why you ask? Because they are Orange of course. Someday I may figure out how to make spinach orange. That will be a great day!!! He would be eating green food without even knowing it!!! Anyways, the sweet potatoes are made with butter and marshmallows. Lots of fat!! Fat and Turkey help the sleep induced effect. I also used a lot of sweet potatoes throughout my meal because I wanted him to really enjoy dinner and eat with us for once. Although it did not work he did eat a lot. Just at a separate table with only me!!

Last night, Chucky slept from 7:30 pm to 9:30 am. It would be my luck that he was at his dad's. He was exhausted!! He also seems in a better mood. Maybe it is the normalcy of going to his dad's this weekend along with the sleep that helped him but I sure do hope he remains calm at least for a few more days. Mommy needs some recoup time. If you have any information regarding how to implement Turkey as our main Staple for meals let me know!!! LOL... If it works I am all good! 

Tuesday, November 15, 2011

Oh, The Cuteness...

11/15/2011 1 Comments


I decided to link up to a few blog hops today but I had a hard time deciding which one. 
They are some great sites and I encourage you to link up!!!



Today was a pretty calm day. Chucky stayed home from school because he had vomited in school yesterday and that meant he has to stay home today and I have the school policy to thank for that. He really wasnt sick. Then we went to bring Princess to her singing group and went to Rite Aid to get him a drink. While we were there he found the aisle for Stuffies!! Just my luck!! Needless to say we did not leave the store without one. LOL!!! Here are some pics from this afternoon and evening!!

This afternoon Chucky got a package from Table Top Pies. There were 6 apple pies in the box. They sent them because we had a mishap in which there was mold on the bottom of one of the pies. Chucky got very very upset. Today he was so happy to see the pies. but he was also apprehensive and had to check the pies. 
He was definitely satisfied and enjoyed eating it!!












Princess got home from school and wanted some of the pumpkin bread that Chucky made with his Grandma. She had a slice of it with some butter spread on top. Yummy and it looked delicious too.





It has been so hard to choose pics from this spontaneous shoot. We had just gotten home from singing group and Chucky took his sisters hat right off her head and started saying,"Alrighty cowboy!!!" He repeated this like 20 times while taking the hat off and bowing forward a little. It was so cute!!

the long road







Tots and Me





Then he was finally sleepy. 
Goodnight my monster and have wonderful dreams.




Monday, November 14, 2011

Sweet and Innocent...At First Glance

11/14/2011 0 Comments

Chucky looks so sweet in these pics. I thought they were perfect. You see, he was sent home from school today after he puked all over himself and the gym floor. Does he look sick to you?
He came home and was absolutely fine. Except of course the nasty puke smell. I don't do puke. 

Chucky's favorite food to eat lately is kind of odd. He loves to eat Tomatoes. Not cut up tomatoes either, but whole tomatoes, and he eats them like an apple. The whole thing!!! Quite messy and I am sure his teacher did not appreciate it when he brought one to school for snack. What is a mom to do though?
 He screamed for 15 min about bringing the darn thing for snack. 
Hey, Don't condemn me yet cause I sent a napkin!! LOL
























Lastly, His IPad and Stuffies. Do you see the giraffe he is holding? He talks to that stuffie every morning and night. Granted he also talks to about a hundred other stuffies, but that one has been with him for about 2 weeks and it goes everywhere. With the exception of school cause he told him that he has to take turns so all his animal friends get to see how cool his class is. The IPad has gotten us through some really tough times you see. He can watch his favorite shows in the quietness of my room with at least 5 of his stuffies and my comfy blanket. He can do puzzles and games and read books as well. Before Chucky was verbal, that IPad helped me to know what he needed and it still does when he is too overwhelmed to talk.


But this sweet looking child can also turn into a raging child in the blink of an eye. I know it isn't his fault as he just gets overwhelmed and frustrated but, it is really heartbreaking to see and the bruises my poor legs and arms see keep these moments fresh in memory. All I am saying I guess is, Don't judge a book by it's cover. He may look all sweet and almost typical but in an instance this:








Could look like this:













But.... Even through all of that I <3 my Chucky Cheese.



Sweet Shot Day