Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Wednesday, February 2, 2011

How Did You Do it?

2/02/2011 0 Comments
Many people lately keep asking me How do you do it? I actually had someone tell me that if they had a child like my son they would have already dropped him off with his father and told him they would be back in a couple years. This was appalling to me but also makes me realize how strong you become when you have a special needs child. Everything you may have thought you couldn't do you find yourself doing.

This post was supposed to be about potty training and then it turned into something entirely different but I think that is OK. As parents of children with special needs, we have to change plans quickly. We have to come up with alternate plans and unorthodox ways of doing things. We have to accept that our way may not be the only way. Most of the time, we have to let the child teach us how to teach them. They have to take the lead.

I think they bring us into their world. A world that we have never experienced. A world that is amazing to them. A world where everything makes sense to them. I love learning about my son's world. I love it when he allows me to join him and learn with him. It makes you expand your horizons and constantly look for new methods to make things easier. They can feel, see, and hear all the hectic and chaotic things in life that we have seem to have become numb to. They can appreciate the smaller gratitudes that happen every day.

Being a mother means having unconditional love. It saddens me that some people have children, realize they are different than most, and never challenge them. They instantly lose hope for this child. They need to be challenged, they need to know that you hold the same expectations for them as you do any other child. They need love. Not love from therapists, and providers, but love from their parents. I see all the down syndrome babies that are in orphanages and it makes me cry. Do these parents even realize what they are missing out on? Becoming a parent shouldn't depend on whether the child is typical, or what struggles you might endure. It should be about giving that child everything you can give them. Every tool that they could need to succeed.

So, to the person who told me that she wouldn't do my job, I pity her. She will never know the love that I know. She will never know how it feels to watch her child struggle so much to accomplish the littlest of tasks. She will never know the joy that comes from that either. The unconditional, heart wrenching, tiring, love that binds my children and I as one. I am glad that I can be that mom. I am glad to have my children and I will never be ashamed of them. I know one day my children will be spectacular beings, doing spectacular things. I have faith in them.

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Thursday, December 16, 2010

Black and White Wednesday

12/16/2010 2 Comments
the long road



My oldest daughter and I have made it a morning routine to take some photos together. We both enjoy it, 
it gives us time together and it ensures that we both pick up our cameras everyday. Some of her pictures are 
very similar to mine because she is still learning. 
Hopefully she will post some on her blog tonight. 
Hope you enjoy them.

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Tuesday, December 7, 2010

Capturing the Beauty, Life, and Emotion in a Photo

12/07/2010 5 Comments
In the world of motherhood, I find that it isn't too often you get to slow down and really be in the moment. A moment happens and before you even get to fully process it another moment is happening. It is kind of like running on a treadmill. You run and run and run and time goes by but when you are done you haven't really gotten to far. Still in the same place but many happenings later. I carry my camera everywhere and I have many shots of my children. I have pictures of them extremely excited, sad, mad, hurt, being brats... LOL... you get the point.

Some look at me and ask why? Why do you take a moment to snap a picture during these times. Well, I want to share a little insight into this. While I can state that my son got his knee stuck in a tree when he was climbing. Can you picture that? It made him very upset, and while we were waiting for help, I snapped a picture. Can you feel his emotions at the time? Thirty years from now I can look at that picture and remember the situation and feel the same feeling that were evoked that day.


16Image by Frozen in Time Photographers via Flickr

Or, for instance when my daughter had surgery on her tonsils and adenoids. Can I successfully pull off explaining the look on her face and how she went into the OR with Pee Pas thumb-print on her Mickey so that he would be with her when I could not? I don't think I could throughly describe the emotions in the room or the way she looked at me as they were rolling her away.






Come on, I could tell you that I make some pretty neat cakes for my kids birthdays, but you don't have a visual, right. Is this better?  My son and daughter are Irish twins and because I am insane and still chose(notice the past tense), to provide them each with a special cake, I would end up with two extravagant cakes to make and always finishing them while the party was started. This was the last year I did 2 cakes for their birthday. Now, I buy one and make the other. At least until I can find a willing volunteer to help make them. Any takers???


How about the look on your daughter's face when she bites into the juicy strawberry that she picked herself?




Your son's emotional breakdown when you tell him that his tree toad can not come in the house. LOL Yes he cried for like an hour. He really loved that toad and he still talks about him today.





This is a great photo that I really love. This is my son "riding" his trike with his treasured pillowcase in the back. He wasn't pedaling cause he didn't know how yet but it was a great photo to be treasured forever.



There are so many memories to be had throughout their childhood and some you may not be able to recall as clear. Don't feel ashamed to grab your camera when they first fall off their bike, or are in the hospital. Although I forewarn you to check if they are OK first. Catch that memory and savor it. It gets harder as they get older to capture those moments, but it is easier for them to tell the stories to their own children with some visual reminders. Hey, and you have blackmail photos for the boy/girl friends. LOL!!!


They say a photo is worth a thousand words, well, thanks to my obsession I have acquired a lot of words in just typical photographs of my children.I have shared some memories with you, will you share some with me as well? What memories have you captured to have conversations about in the future? Are they all happy or do you capture it all as a whole. This is life, it is real, and everything is not happy happy joy joy. So, live in the moment of a picture that says way more than any blog post I could write. Enjoy!!


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Monday, December 6, 2010

Confessions

12/06/2010 1 Comments
I am ashamed to confess that I am not much of a sympathetic mom when it comes to my children vomiting. Seriously, I mean I would rather pay my child to clean up their own puke then have to do it myself. My daughter has a stomach that mimics mine and I found it very sentimental that this morning as I was running to the bathroom from a coughing fit, she was right behind me. The question remains though, Did she puke? No!!!! She rubbed my back and asked me if I was ok. I think I just determined that my children have a strength that I don't have.

Tuesday, November 30, 2010

30 Days of Truth Day 3

11/30/2010 1 Comments

Something I have to forgive myself for:


I think of all the things I need to forgive myself for, and there are many, so I will start my list and see where it goes. To start I think I need to forgive myself for allowing my past to dictate my future. While this may seem confusing, it is something that I have accomplished now. Back a few years, I was falling into the same situation over and over and over again. I mean I think my son is repetitive, maybe he got it from me. LOL.. No, really, I didn't know what love was and so I kept putting myself in abusive relationships. This was in part to do with my childhood as well as low self esteem for myself. I have come a really long way since then and I have to remember to give myself kudos for what I have accomplished.

Another big item to forgive myself for was hurting and pushing away anyone that ever got close to me. It really hasn't gotten me very far as I actually have lost contact with a countless amount of people that were very good to me. I tend to get scared, yes me, scared. I get scared that if they know every aspect of me they won't want to be around and so when I feel as if they are getting too close, I do something completely stupid to make them go away. I know I do it and it is controlled so much better but I do it and I always put myself down for it. But, I guess the truth is, if they really truly want to know me and be a part of my life, they will be around no matter what I am going through. I think I need to be more open and honest with myself and the people I love about how I feel and accept that they may not be able to relate or agree and that is ok.

Well, I think I have procrastinated enough, the true and biggest thing I have ever done (that I can't seem to let go of) is the abortion I had in 2008. I was with someone that I thought really loved me, we were engaged, but it wasn't real. He was abusive verbally and physically. One day it became sexually, as he held me down on the bed and took what he wanted. I feel myself getting angry as I am typing this but I think maybe this will help me. About a week after this happened, (no, I didn't leave, not yet) he violated me for the last time when he dislocated my jaw and then proceeded to chase my daughter when she was calling for help. Never ever was my daughter in this position and the thought of forgiving myself for putting her there is out of the question. I can't, but I found the strength to pull myself up off the floor and protect my baby. Lets just say that when the police got there he looked worse than me. My daughter was in the car where I put her, locked safely. They took him away and he went to jail. I did the right thing and I pressed charges.

About a month later I found out I was pregnant. I hemmed and hawed over what to do and honestly, I feel like I made the right choice. I didn't want to bring another baby into the world under those circumstances. It just wasn't right, and up until that point in my life I was against abortion. My views changed when I was in the spot of making a choice, not just for me but my family and the unborn. Do I think about that day? Yes, I will never forget it. Just so you know they had to knock me out to do the procedure and it was one of the hardest things I have ever had to do. I think I need to forgive myself for that above all else. I let my baby girl go and I look at my other babies and wonder what she would have been like. What color were her eyes, hair? I can say that even though I have not forgiven myself completely for this I do feel that it was a choice and I did my best to make the right one.

(If you want to see previous days please click on the tag 30 days of truth)

30 days of truth: day 2


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Monday, November 29, 2010

30 days of truth: day 2

11/29/2010 3 Comments

Something I love about myself:
This is much harder than I thought it would be because it is easier to see the negative. It stands out more, and unfortunately, everyone focuses on it. I guess I love the fact that I am so outgoing. I can have a conversation with someone very easily. I think sometimes I look forward to going shopping because I might have the opportunity to have some nice grown up discussions that seem to never occur at home. Again because there is no time and well, all discussion at home seem to focus on the negative things. Who peed on the toilet, who left the light on, who left the closet door open? You know the deal. Then you go on a forum seeing people downing stay at home moms. It doesn't stop there because then we have the wonderful conversations about how my son's poop looks and my daughter telling me about her favorite singer or a friend in school that is mad at another friend, It goes on and on and on...

I really am not trying to attack any one person (as it has been suggested), I am just saying that the outside conversations with strangers seem to be relaxing to me. It isn't about who did what, who went where, or anything controversial. I guess it is good cause I can even have a debate with this person and, well, what are the chances I will see this person again? Even if I did would it matter? We have nothing invested into each other so... to each their own opinion. Okay so I am starting to rant. I love the fact that no matter what is stressing me I can be bubbly and outgoing to others and also provide support and encouragement at the drop of a dime. I love that I can find enjoyment even if it is only for a half hour sitting outside taking pictures. They say it is the simple things in life. I love that I can see those simple things. What do you love about yourself? Was this hard for you too? Come on, I dare you, Join the Hop!!!!
(If you want to see Day 1 please click on the tag 30 days of truth)

30 days of truth: day 2

Saturday, November 13, 2010

Ignorance and Self-Control

11/13/2010
I was in Walmart about a year ago with all four of my children. We had finished our shopping and were now waiting at checkout. My youngest was having a really hard time and was stimming, this is a repetitive behavior that he does to calm himself down. Well, he started spinning and was flapping his hands and I happened to be on the phone with a very supporting mom who also has a son on the Autistic Spectrum. We were talking about how aware we have to be with our children as they don't sense danger.


Well, It was that moment that my four year old decided he needed to crawl on the floor making cat sounds.He was trying to get to the cashier and scratch on her legs. I am thinking, boy, this line just can't move fast enough. I told my friend I had to go and tried to deal with calming my son down. There was a woman and her husband in front of me in line and a mother behind me and the lady behind me had a toddler that looked about the age of my son but he was sitting there quietly. Not my son, He was crawling on the floor meowing. The lady behind me was looking as if saying in her head, "Get control of that kid", She probably wasn't thinking that but at the time that was all I could think of.


Well, The lady in front of me looked at me and said, "I have dogs smarter than him." OMG... I could feel my blood boiling, the rage just building and I looked down at my adorable son who was now kneeling and flapping his hands, and I thought,"How can anyone judge him?"  I took a deep breath and as calmly as I could I said,"Excuse me?? That is my son you are talking about. He is on the spectrum. It's not his fault." She said, "Oh, I thought it was someone else's kid."


What was really going through this woman's head? What gives her the right to talk about anyone's child that way? Comparing them to a dog? WTF... This was very appalling to me and it made me realize just how mean people can be and how happy I am that my son cannot understand and read these emotions like a typical child would.


I am glad that he is who he is and that he doesn't judge others. I think the best realization I had was that it is a cruel world but at times I wish my brain acted like my little boy. He is innocent, honest and forgiving. But, on the flip side it makes him very naive. How easy it is for someone to take advantage of him and decieve him. How do I protect him from that which he is unknown to? Well, the self control that I managed to obtain that day was amazing. In my head I had beat the woman to the ground but in reality I was just in shock that she could be so blunt and unbelievably ignorant to make such an appalling comment. 


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Wednesday, November 3, 2010

November 2, 2010

11/03/2010 4 Comments
Today was a busy and exhausting day. Typically I spend my days with about 4 hours filled with screaming, crying or tantrums. Today we hit an all time high of about 7 hours of insanity. When you have a special needs child, of any disability, it puts a strain on all the people in the household. The other's involved most often feel as if they never have your attention or time. This can be heartbreaking and also trying. You see I have tried to give my oldest daughter some individualized time and while she loves it when it is occurring, the novelty dies quickly. What I mean is that even after spending an hour with Krystal on her skateboard she still felt compelled to interrupt when Charles needed some sensory input. This made the situation 10 times worse as then not only was he upset but he started getting physical with Krystal. While I know that I need to be stern and have consequences for his behavior I also know that she tends to egg him on and tease. If she sees he is getting upset with what she is doing rather then try to prevent it from escalating she continues. I know what you are thinking, She just twelve and maybe she doesn't understand. But, she does and we do talk and I allow her to be helpful although there are times when he needs his space. I feel that she should respect that. I guess I probably sound like a completely frazzled mom who doesn't know how to parent and trust me I do feel that way sometimes. But, as much as she is learning so am I. I guess I just have to admit that I am only human and I do seem to be less patient at times with her than I am my youngest. Beyond that situation my son decided that he didn't want to leave the house. I had set the timer gave him a warning about us leaving, tried to help him get prepared and to no avail he was not thrilled about it or ready. He was kicking crying and spitting on the floor. The spitting is a new behavior and I told him it was totally unacceptable. I cleaned up his mess, coaxed him to pick a few toys to bring and scampered out the door. The rest of the evening was pretty smooth aside from him running towards the lights(traffic lights that is!!!). What a scare. Well, bedtime went smooth so smooth in fact that I fell asleep with Charles at around 8 pm.