Showing posts with label Disability Resources. Show all posts
Showing posts with label Disability Resources. Show all posts

Monday, December 6, 2010

Hello There From Our Planet

12/06/2010 6 Comments
Hello, and welcome to my blog. My name is Charlene and I am 31 years old. I love photography and started this blog to write about my journey into another world. I am a single mom of four wonderful sarcastic monsters children.

 Krystal is a twelve year old girl who can sing like an angel. Jocelyn is a seven year old girl who is very smart but sassy. Jacob is six and loves Mario. Lastly Charles who is a four year old boy that has changed my entire world. You see, after having three children, I thought  was well prepared when I had my fourth. Hold them, rock them, play with them, teach them, love them, change their diapers. That covers the baby stuff right? Nope!!!!

What if your baby doesn't like to be held, doesn't coo, hates diapers, and the only thing you can do right is feed them? I was so lost. My son Charles has Autism Spectrum Disorder. He never cooed or wanted to be touched. There was no connection, and as he got older he just wasn't meeting his milestones. He didn't walk tll after he turned two and didn't speak until he was three(even then you couldn't understand him). So much for being prepared eh?
100_1565-bImage by Frozen in Time Photographers via Flickr
I felt as if the whole planet had tilted and I dropped off into orbit for a while until I finally landed on a planet we call Autism. This has been a rough road and not just for me but for everyone involved in my life. Family that can't seem to wrap their heads around the idea. It is hard to connect with a child that seems to have no motivation to connect with you. It just takes more effort though. He is an amazing young man but our days are long and don't forget there are three other children involved.

This has been a big adjustment for them too. We used to be able to have big family gathering and go all sorts of places but now these things are limited. They have to tolerate the screaming for hours that I myself have a hard time dealing with. I invite you to join me and my children on our exciting, odd, enlightening trip on the planet Autism. We welcome you into our world.


Lazy Meet & Greet

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Tuesday, November 9, 2010

November 8, 2010

11/09/2010 1 Comments
You know those days when one minor schedule change can throw off your entire day. I had one of those days. I will explain in a minute. The majority of my day went really smooth. Kids were in a good mood and the Taconic Developmental Disabilities Service Office came to my house to discuss my son's eligibility and fill out all necessary forms. This is a tedious process but necessary. I am not sure what the outcome will be but it seemed to look positive. It was an hour meeting that seemed to be me answering a ton of familiar questions. She also explained the services that they help to implement. They included but were not limited to Respite care, Behavioral specialist, Medicaid waiver and a service coordinator. The Medicaid waiver makes it possible for some funding for therapies as well as attending certain conferences at no cost. It gave me a feeling of relief that maybe my advocating is doing something.
When my daughter got home from school she handed me a test that she received a 56 on. I looked at the test and it was absolutely easy work. I am not trying to demean her but the answers were on the graphs and she understood the work. Trust me, I checked. To make it so much better it was an open book test and the teacher wrote a note stating that she completed the test in ten minutes and didn't even use her cheat sheet. Wait, It gets better, She didn't even complete the cheat sheet!!! Oh my, I was so mad!!! I had to sign this test and send it back to school. I had to take a minute to breathe and then I told her that she needed to redo the test before I would send it back to the teacher. She got so mad and she crinkled it and sat down to finish it. I had to bring my son to Equine Therapy so we packed up and left. 
This might not seem like a big deal but I feel  like in order for you to fully understand I must explain what this is for my family. Once a week Charlie goes to the Stables and has Physical/Occupational therapy while riding the horse. This activity also is helping him socially and emotionally as it prompts him to make requests verbally and also teaches him to follow directions. It also allows me some much needed time with my daughter one on one. I like to say it grounds our whole family with a little bit of tranquility. It is a 45 minute drive to therapy and he usually has a rough drive there but is really mellow going home as long as he gets a snack and drink on the way home. He seems to have gotten this misconception that if we go in the car we need to eat and drink. Mommy is not liking this thought, or should we say the car does not agree with it. LOL.. We drove there and went into the stables and his therapist was not there. Mind you as I said the ride to therapy is far from a pleasent one but once he is around the horses he is a different little boy. I called her and she said, "I sent you an email." Why not cal, she wasn't canceling due to being sick, she was cancelling cause the weather was not supposed to be good. Why not call and let me know? Well, Needless to say my son threw himself down on the ground and was very upset. After about a half hour I had him pretty calm. I suggested that he see the other horses and give them hugs because they were lonely. This seemed to work, until we got in the car. Then he was hungry and thirsty and so I told him that we could stop at Benny's Pizza and get a slice. We ate there and then went home. Krystal finished her homework although she was not happy about doing it. Geez... I am not always happy to do things I have to do. I guess the positive is that it got done. 
Curt was coming back from Florida and I needed to pick him up. He had been gone for a week and it was going to be nice to see him. Curt called earlier to tell me his flight had been delayed an hour so I wasn't sure what time to expect him so I was waiting to hear from him. When he called I had already arranged for the kids to be able to stay home but for some reason Charlie would not go to sleep so.. load up the car again and he was asleep within a block. It really is amazing how much havoc one change in schedule can cause. He was so upset over missing Equine that it was so much harder to do anything else. I even use a timer to transition but I am convinced that there are some things you just cannot prepare or predict for our children.
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