Showing posts with label Holidays. Show all posts
Showing posts with label Holidays. Show all posts

Tuesday, November 29, 2011

Just a Thought for Pour Your Heart Out

11/29/2011 0 Comments

The holidays are here and that can be really hard. It is overwhelming for me as a parent so I can't imagine how my son perceives it. I know the pain that hits your heart when a child you love so much seems so far away. I know what it feels like to get them a present you know they would love and not even have the recognition of a smile or hug. I know because I live with it everyday and in the begining I was just like all of the outsiders in my life. They don't live it and understand it. They haven't been around it long enough and I can understand their feelings.

While I can understand it I do have to say that in no way does that condone shunning a child. They do have feeling but it is harder for them to explain them. They are happy with the spinning top that I am sure he will play with for hours nonstop. Please take the time to enter into their zone. It may be easier for them to let you in. Try taking them to a quiet place and show them how to use their new toy. Try to join them in however they want to play. Basically, Just try!!!

Here is a poem that someone posted on Facebook and I thought it was fitting.


Autism Night Before Christmas 

by Cindy Waeltermann

Twas the Night Before Christmas
And all through the house
The creatures were stirring
... Yes, even the mouse

We tried melatonin
And gave a hot bath
But the holiday jitters
They always distract

The children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN head

Did I get the right gift
The right color
And style
Would there be a tantrum
Or even, maybe, a smile?

Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.

“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attack

We smile and nod
Because we know deep inside
The argument is moot
Let them all take a side

We know what it’s like
To live with the spectrum
The struggles and triumphs
Achievements, regressions…

But what they don’t know
And what they don’t see
Is the joy that we feel
Over simplicity

He said “hello”
He ate something green!
He told his first lie!
He did not cause a scene!

He peed on the potty
Who cares if he’s ten,
He stopped saying the same thing
Again and again!

Others don't realize
Just how we can cope
How we bravely hang on
A the end of our rope

But what they don’t see
Is the joy we can’t hide
When our children with autism
Make the tiniest stride

We may look at others
Without the problems we face
With jealousy, hatred
Or even distaste,

But what they don’t know
Nor sometimes do we
Is that children with autism
Bring simplicity.

We don’t get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try hard every day
That they make us proud
More than words can say.

They work even harder
Than you or I
To achieve something small
To reach a star in the sky

So to those who don’t get it
Or can’t get a clue
Take a walk in my shoes
And I’ll assure you

That even 10 minutes
Into the walk
You’ll look at me
With respect, even shock.

You will realize
What it is I go through
And the next time you judge
I can assure you

That you won’t say a thing
You’ll be quiet and learn,
Like the years that I did
When the tables were turned.


Friday, December 24, 2010

Want Reaction, Don't Look Here...

12/24/2010 5 Comments
How are family gatherings for you with your special needs child? Do you cringe like I do with the thought of going to someone else's house and around a bunch of people? These things are actually kinda scary for me. Then I have to wonder how he will react to things. Will he say thank you and smile when given a present? Will he have a major melt on their kitchen floor? Are these normal concerns? How do you prepare for holiday gatherings?

Yesterday we went to a family dinner, I know scary right? Actually the dinner part went really well and my sister was sure to have a drink that Charlie could have and would like. This shows some awareness and I am so grateful for that. She even made sure that he had a quiet place to go when he felt overwhelmed. She is really good with him. They used their best China (paper plates) which worked wonderful. Not only did it save her on dishes but it made it easier for Charlie cause he didn't have to deal with the noises from the silverware on glass plates. Whew, one more accommodation that, although there were other reasons for it, made it easier for him to cope with the gathering. My sister even turned the music off so that Charlie could eat at the table without his head phones.

Charlie did extremely well last night. I was impressed. He sat at the table and attempted to eat. He ate a lot of sweet potatoes and even attempted to try the Manicotti. Dinner was great very tasty, and it even included a little conversation. Some of this provided by Charlie telling his Auntie that he could eat sweet Potatoes all day long. Mind you he said this quite loud but nobody seemed to mind. Hey, it is better than him screeching or crying right? He then retreated to a room by himself to play in a quiet zone. He was playing with my nephews stuffed animals and talking to himself. It was really cute.

Present time, which happened before dinner was interesting. My kids sat down together to open presents and Charlie was opening but not really excitedly and not paying much attention to what he was opening. It appeared that he wasn't happy with it and that made my sister question her choice for him. Just so you know, he loved it. He just can't express it. He didn't smile, just took his box and walked away. No thank you or anything. I know, that was my big concern. Was he going to appear to be rude or ungrateful?

My sister, a little thrown off my Charlie's reaction, or lack of, decided to take him to a quiet place and open the box. They went into another room and opened it. It was a huge Sponge Bob floor puzzle. The floor puzzles have been an all around wonderful gift for Charlie that he enjoys a lot. His Auntie has been getting him them cause he enjoys them so much. It has kind of become a traditional gift for the two of them. I haven't told her, but I thought about purchasing one for Charlie for Christmas and opted not to in hopes that she would get him another one. She did and when they sat down together to put it together he was so happy. The evening went spectacular at her house.

The over stimulation really kicked in when we left. He had a melt down in the car because we unbuckled him and he couldn't find one of his stuffies. It is ok... we found it. *sigh* When we got home he flipped because he was asleep and we unbuckled him. Oh My he was kicking his feet and screaming like crazy. I wonder what the neighbors thought. Wait, they are accustomed to it now. LOL.. I remember when we first moved here and after a month the lady across the street asked me if everything was OK over here.

I tried really hard to calm him and pick him up but his arms and legs were thrashing inside the car and it was not possible. Meanwhile his sister was sitting on the other side of the seat dodging the feet that were flying towards her face. I, overwhelmed by this, yelled at her to get out. Looking back on the situation, I know that she was probably just as overwhelmed as I was and couldn't process getting out of the car. My boyfriend lifted him out of the car and I looked for the stuffie. I found it and brought it inside.

There in the foyer, was my son screaming at the top of his lungs. I picked him up and rocked him back and forth. He was still so upset so I proceeded to carry this screaming and kicking child up the stairs. I put him in bed and eventually he calmed down and went to sleep. I can't say that was the end because he woke up screaming in a complete night terror mode at 3:30 am. This lasted for an hour and a half. We fell asleep together but I was on the bottom of the bed because he did not want to be touched.

The gathering went very well and I guess even though I felt the aftermath, my son was able to keep it all together for the party. It shows that he is comfortable to let loose while at home and maybe he is learning how to control his behavior in public. All, I know is I was overwhelmed and tired but, I am proud of my son and his strength to get through  such a stimulating event.
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Thursday, December 23, 2010

Wacky Wonderful Wednesday

12/23/2010 2 Comments

I decided to start a mid-week post to try to reflect on some crazy, or happy moments that just get you feeling giggly inside. It could be a crazy moment that you just wanted to tear your hair out over at the moment but know has you laughing. I really want to try to reflect the small moments that happen when we least expect them. I know I am posting this a little late and so I plan on keeping it open until Friday this way we can all hop along. Please be sure to grab the linky and if everyone enjoys this we can do it every week. 


It was such a long day and my son had a Christmas play today. It was so wonderful!!! I mean spectacular and I cried. Call me a sap if you must but I have gone to many little ditties at his school and he usually is the kid all spaced out standing there while everyone else was singing and dancing. This year I expected nothing less but yet, nothing more either. I was happy to just see him up there. 

I am happy to declare that I was really wrong. My son for about a minute and a half, sang out boisterously with a big smile on his face. He was a little off time but he tried and for the first time I saw him join his class in an activity.  He was happy and while he had a really hard time standing there and he only sang in the beginning, but he sang, and that is my "Small Treasure Tuesday". Although that is far from a small treasure on my planet, it is an amazing accomplishment. 

I needed to share that because it brought so many emotions up in me. I was extremely proud of my son and, although I don't want to sound conceited, I am proud of me as a mom. I am so hard on myself sometimes and this year has been really rough with the diagnosis, self injury, behavioral problems, and learning issues. Today, my son made it all worthwhile. These moments are my rewards of parenting. I love my kids and my ASD son is amazing!!!!


Friday, December 17, 2010

What I Want For Christmas

12/17/2010 6 Comments
Welcome to Thursday’s Special Needs Blog Hop. This is our last blog hop of the year as we are taking the next two weeks off.  Tammy From Autism Learning Felt and Stacie from Super Mommy To The Rescue host this blog hop.   They created this Blog Hop for Special Needs Bloggers to get together and support each other.   Please make sure that you are linking your post directly to the blog hop.


Please follow Tammy from Autism Learning Felt and Stacie from Super Mommy To The Rescue when you join. They are great people and provide a lot of support and insight. No matter what special need your child has, it is easy to feel as if you are struggling through it alone. This gives a deeper insight and this week they want to focus on us as Mom's and Dads. We focus on our children's needs and wants all year round and I urge you to take 5 min or longer if you find this especially hard, to put some thought into what you need or would like for Christmas.
This weeks Theme is What I Want For Christmas:
  • A winter coat. cause I have not had a new one in like three years. I find myself bundling in layers throughout the winter.
  • A van cause my car has broken and does not run. It would be better to have a van anyways cause then I could separate my children so they don't kill each other.
I am finding this really hard. I am hitting a road block here. Wait got another idea.
  • It would be great to have a canon 28-90 mm lens for my canon eos camera as mine broke due to how much use it had. *Umm... yeah, I have an obsession. LOL
  • An external flash for my camera
  • A family gathering where everyone showed the same acceptance to each of my children and actually tried to interact with my son.
  • To have one whole day without a meltdown over something that seems so trivial to me. LOL... that is a joke right?
  • Almost forgot this one...... 2 boxes of hair dye... My hair is going white and I cannot figure out why. 
Okay... I think that is all as it was hard enough to think of that. I almost have a headache from thinking about what Mommy wants. I truly hope that when Christmas morning comes, I have a house of ecstatic children and I can enjoy the sentiment and excitement of the day. My son told me this morning that he wants a new orange bear for Christmas and guess what. I already found an identical bear for him. My daughter said she wants me to have a good day with them. My sister said I should go out and get myself something for Christmas but I just cannot justify spending money on myself. 


Well, I hope everyone has a very Merry Christmas and even though the kiddos will be waking us up at six in the morning when we were up until 4 am wrapping presents but try to welcome it and enjoy the laughter and joy that they have. Take a moment to enjoy your family without worrying about all the trivial stuff. I make it a point to put breakfast items in the stocking so that I am not trying to stress over breakfast and stuff. Have a wonderful holiday!!!!  Now it is your turn.... Think about it, What do you want for christmas? I can't wait to hear from you. Join the hop.”AutismLearningFelt”



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Friday, December 10, 2010

Five Question Friday

12/10/2010 1 Comments
Christmas in the post-War United StatesImage via WikipediaI found this blog hop that I thought you all might enjoy.


Copy and paste the following questions to your blog post. Answer them, then link up!!


Questions for Friday, December 10th: 

1. Do you open presents on Christmas Eve or Christmas Day?

We usually open one present on Christmas Eve. The rest is saved for Christmas Day!!

2. What is your favorite Christmas cookie (or candy)?

Sugar cookies

3. What's the worst Christmas gift you've ever received?

There is never a bad Christmas gift. It is the thought.

4. Christmas song that you love?

Jingle Bell Rock


5. How many trees do you put up?

Just one tree... It takes all I have to keep that standing and the decorations in one piece.


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Flash Back Friday

12/10/2010 3 Comments
My ex loved his ugly white christmas tree. I hated it!!
Jocelyn's First Christmas


Krystal's First Christmas
Jacob's First Christmas





























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Friday, December 3, 2010

Flash Back Friday

12/03/2010 2 Comments
I decided to join the Flash Back Friday Blog Hop because as most of you know it has been a very hectic week for me. This will allow me to reflect on a happy memory from my past that I haven't thought about in a while. Because Christmas is right around the corner I think I want to reflect on that. The picture was taken on my daughters second Christmas. She was diligently trying to put her special ornament on the tree. It had to go on one specific branch. I remember the smile she gave me when she accomplished it.



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To really show the significance of this photo, I hope you all don't mind that I post an up to date photo as well. Oy Vey, I am really getting old. She is now a sarcastic wonderful 7 year old.
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