Showing posts with label pour your heart out. Show all posts
Showing posts with label pour your heart out. Show all posts

Tuesday, November 29, 2011

Just a Thought for Pour Your Heart Out

11/29/2011 0 Comments

The holidays are here and that can be really hard. It is overwhelming for me as a parent so I can't imagine how my son perceives it. I know the pain that hits your heart when a child you love so much seems so far away. I know what it feels like to get them a present you know they would love and not even have the recognition of a smile or hug. I know because I live with it everyday and in the begining I was just like all of the outsiders in my life. They don't live it and understand it. They haven't been around it long enough and I can understand their feelings.

While I can understand it I do have to say that in no way does that condone shunning a child. They do have feeling but it is harder for them to explain them. They are happy with the spinning top that I am sure he will play with for hours nonstop. Please take the time to enter into their zone. It may be easier for them to let you in. Try taking them to a quiet place and show them how to use their new toy. Try to join them in however they want to play. Basically, Just try!!!

Here is a poem that someone posted on Facebook and I thought it was fitting.


Autism Night Before Christmas 

by Cindy Waeltermann

Twas the Night Before Christmas
And all through the house
The creatures were stirring
... Yes, even the mouse

We tried melatonin
And gave a hot bath
But the holiday jitters
They always distract

The children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN head

Did I get the right gift
The right color
And style
Would there be a tantrum
Or even, maybe, a smile?

Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.

“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attack

We smile and nod
Because we know deep inside
The argument is moot
Let them all take a side

We know what it’s like
To live with the spectrum
The struggles and triumphs
Achievements, regressions…

But what they don’t know
And what they don’t see
Is the joy that we feel
Over simplicity

He said “hello”
He ate something green!
He told his first lie!
He did not cause a scene!

He peed on the potty
Who cares if he’s ten,
He stopped saying the same thing
Again and again!

Others don't realize
Just how we can cope
How we bravely hang on
A the end of our rope

But what they don’t see
Is the joy we can’t hide
When our children with autism
Make the tiniest stride

We may look at others
Without the problems we face
With jealousy, hatred
Or even distaste,

But what they don’t know
Nor sometimes do we
Is that children with autism
Bring simplicity.

We don’t get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try hard every day
That they make us proud
More than words can say.

They work even harder
Than you or I
To achieve something small
To reach a star in the sky

So to those who don’t get it
Or can’t get a clue
Take a walk in my shoes
And I’ll assure you

That even 10 minutes
Into the walk
You’ll look at me
With respect, even shock.

You will realize
What it is I go through
And the next time you judge
I can assure you

That you won’t say a thing
You’ll be quiet and learn,
Like the years that I did
When the tables were turned.


Tuesday, August 16, 2011

Stress..... Change......Children

8/16/2011 0 Comments
Well, summer school has ended and the chaos never seems to end. I clean, they mess, I clean again. Physical fights and screaming throughout the day. I am not sure how every other parent does it without losing their minds. Any thoughts? I went camping with some friends and all of my children and it went pretty good. At least better than expected!! There were a few meltdowns but they were manageable. It seemed to be a stressful trip for me though because I was walking on egg shells not sure what would trigger them.

Nevertheless, we had fun and the best part was the kids faces when they went swimming in the lake. Chucky loved the Orange buoys.  My camera broke when we were there so that is an extra stresser cause I don't have enough right? Chucky has been having toileting issues as of late and I am not sure how to handle it. He is wetting himself throughout the day. Isn't regression great? I am so excited to clean pee off of every floor in my house. Yippeee!!! Sorry for the sarcasm but I did say I was stressed.

I haven't been blogging as much cause it is so hard to concentrate anymore. I cant sit here for more than 3 min without an interruption and then I never seem to get back. When I do, there is other things on my mind and I just cant write. I hope this gets better with school coming up and I can sit down and maybe finish some of the 50 drafts that I had started but couldn't finish but don't hold your breathe. I just wish some of this craziness would ease off for a little while. Well, that was a scream crash boom...... Gotta go!!!!

Wednesday, January 5, 2011

So Yelling is Out…umm..What can I do?

1/05/2011 1 Comments
I read an article today titled , I Have Asked You A Hundred Times!. It really hit home. I have been having a torturous time with my tween. She is just lazy, ridiculously lazy. It drives me insane.
I used to have her take a shower in the morning but she was never ready when the bus came and would be leaving with wet un-brushed hair. I now insist that she take a shower at night but, it is still a battle. Do your tweens argue about a shower? I mean you would think they would want to look their best right? I am so confused, so I decided to take the natural consequence approach.

I asked her to take a shower and if she chose not to that was her choice. I told her that I would not take her anywhere if she was not showered. Do you know the girl didn’t shower for almost a week. She didn’t care that I wouldn’t let her sit on the couch or at the table during meals. She didn’t even get the point when one of her friends told her she smelled.

The end of that was when the guidance teacher called me telling me that she had a smell on her. I explained the issue to the counselor and she assured me that this is a normal phase for tweens. Although she said it usually goes on with boys. I explained how I tried to allow her peers to influence her and it didn’t work. So, now I feel as if I have to be on top of it. I will not remind her anymore. It is now that she takes a shower by 7:30 or she goes to bed at 8:30 instead of 9:30. I think that is reasonable.

My sister recently wrote a post titled The Mom (Super Human) in Me -VS- The Human in Me. I encourage you to read it cause it is a great post. It really hit home for me. I too struggle everyday with my human form vs. my Mom form. Do You struggle with this too? Do you find yourself fighting the urge to say,”That was a stupid thing to do?” when your child trips over the shoe they left in the middle of the floor instead of asking if they were ok? It may sound mean but come on, I know she has brains and I wish she would use them.

I am only human and I am not trying to be mean. I love her so much but the arguing has got to stop. I hate yelling at her and I find myself so frustrated with her actions, or lack of actions that I cannot enjoy her presence.  Does that make me a horrible mother? She wants me to listen to her sing and while I would love that in the back of my mind all I can think about is the fact that I want her to clean her room and take a shower.

I can take a little of the blame for her behavior. I totally cringe in saying that when the going gets tough and I don’t want to fight with her, Mom gets going. Off to do something else, leaving her to do, not what I am requesting her to do, but what she chooses to  do. No, I don’t let her roam the streets, not that she would get far cause we live in the sticks, and I will not allow her to go out. Well, maybe I do … *cringe*. There are times that I am so annoyed and I justify her going out as we both need breathing room. This is just one more excuse.

I challenge myself to be more consistent but not to yell, ummm… or scream. It has to be possible, Right???? So, I shall state clearly what I expect of her and take the things that mean the most when she selectively goes deaf. LOL! Sometimes I find it so hard to try to get control of the situation because I have a special needs son. He takes up so much of my day and somehow… when things get tense with Krystal or I am trying to draw the line, in chimes Chucky and he needs me NOW!!!

How do other moms handle this? I think I might go crazy. I used to think that after you have three children, you can add more and it didn’t effect anything. For instance my “wife” as I call her, used to ask me to babysit “her” two girls, which are really mine, but she would always ask,”Are you gonna be ok? That is a lot of kids.” At that point I would respond with,”Are you kidding? After three extras don’t count. They all occupy themselves and whatever bickering could occur can’t be any worse than with three.” She always thought I was crazy, but now….. forget it. I cannot take on more than one more child.
My maximum child occupancy has changed from unlimited to five. I find myself doing Math and really scheduling things. If Chucky goes to his dad’s house I can have at least two kids over but.. if he is home the parents must stay. I do it at birthday parties too… I am such a wonderful host..LOL… I will see how many moms or dads can stay through the party and lend a hand. Most of them are well aware of the situation and are more than willing to help.

This overwhelming barrier of motherhood involving special needs lets my daughter ignore my requests and since my brain cells died after I had Charlie, I can’t remember anything.  Do you have the same problem? How do you juggle it?

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