Showing posts with label support. Show all posts
Showing posts with label support. Show all posts

Monday, January 10, 2011

The Opposite of Ignorance is Awareness

1/10/2011 0 Comments

Last night as I was doing a little grocery shopping with Chucky and Pumpkin at Hannaford a woman approached me asking about the device my son was playing with. I explained that it was an iPad that he got for Christmas . She asked what it did and inquired if they were for children. I told her that we use it to help him communicate and also to teach him. They are not just for children but many children use them. I did NOT mention that Chucky had Autism. It didn't even cross my mind to tell her this.

I question myself about why I didn't take the opportunity to educate her about my son's diagnosis. Why not educate an open ear? Was it for fear of rejection or maybe just an avoidance of the topic? Although it may have seemed like a perfect situation, at that moment, I didn't need to. He was calm and was watching Curious George. I don't feel there is a need to point out to everyone that he has some difficulties. I want them to know him for who he is and his name is Chucky Cheese not Autism. The woman continued to chat about her son and Curious George and the iPad when my son began flapping and screeching.

It was at that moment that my heart dropped and I felt like I wanted to run in the opposite direction. Instead I tried to calm him and maintain the conversation despite my fear of a rude ignorant comment. I misjudged the woman and I am sorry for that. Instead of making a nasty comment or judging my son she calmly asked me if my son had Autism. Yes, you heard me right. She asked me about my son without coming to her own conclusions and without making false judgement.

This is the first time I have encountered someone that was able to question the behavior without judging my parenting and being critical. My offering the information wasn't needed. While I was cringing and looking for a quick exit she was connecting and inquired. Maybe she saw the instant fear of rejection in my eyes or the look of complete tenderness in my interaction with him, but she got it and was compassionate. I appreciate this and encourage anyone who is unsure about a situation to ask. It feels better than to have someone gawking or making rude comments.

This lady made my day. Not only was she open to attempt to converse with my son but she was also open enough to ask questions. She wanted to know more which is how we spread awareness and how we open the doors to acceptance. The story doesn't end there because she also looked at me and expressed how wonderful she felt I was doing with my son. This made me feel as if I was invincible even if that invincibility only lasted 5 minutes. It was worth it. So, to the woman in Hannaford I must say thank you. You gave me more than you could ever know just by asking a question and exchanging kind words and a smile.




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Friday, December 10, 2010

Anger isn't Bad

12/10/2010 1 Comments
Last night I spoke with another Mommy that I met. We spoke for almost two hours. For her privacy I will name her J. J is my new neighbor on my planet. She is finding it hard to cope with the fact that her son may have a diagnosis and he is having problems. She has a set of twins and they are 18 months old. She has beautiful children and she is an awesome mom. I know she doesn't always feel that way so I want to reassure all the newer moms that none of this is your fault. I am writing this because I wanted to openly identify with everyone. When I started this blog post I was being careful to respect privacy but, I know see that she wrote a post regarding her son after our conversation, so I want to invite you to visit her blog and offer your support for her. As a mom I am sure you can understand that she needs that more than anything else.

My son is four years old and he has been receiving Early Intervention since he was 18 months old. I think in the beginning I went through many phases. These included denial, anger, sadness and many more. At this point I struggle to try to look for the positive in my situation. J asked me how I can think about Autism the way I do and I was a little stumped by the question. I really am trying to be honest here. I wanted to tell her what I knew she needed to hear. It was hard though because even though I can speak the talk, I cannot always walk the walk.

It seems that I have been in a very positive mode lately with my writing. Trust me that is not always so. I do not want you to feel at all as if you are the only frazzled and overwhelmed mom. Actually when i started this blog it was my hope to share with you the ups and downs. I don't want to sugar coat things and I don't want it to just be about my son. This blog was meant to be about all of my family. My son's difficulties cause difficulties with the whole dynamic of a household. I cannot seem to spend the same amount of time with my other children because he is so demanding. 

How did you cope when you first got your diagnosis? Were you sad? Angry? If any of you were like me you felt all of your emotions and they were off the rictor scale. I would be calm one minute and crying the next. Does it get easier to manage? I guess this depends on when you speak to me. If things are good at the moment, I seem in control, but it isn't always like that and being I cannot sit at my computer and blog while he is in midst of a meltdown I guess I do not always accurately describe the anguish I go through every day.

I hope that you as a parent will read my blog and take something out of it. I am angry. I do ask, "Why my son?". But in reality, if that is all I can focus on what am I accomplishing? Have faith in your child. Push them to take that extra step. Try not to lose sight of what they are capable of (sometimes they can amaze you) instead of focusing on what they can not. This isn't easy, AT ALL, but it does help you to cope and keep on going. Take your anger and put it towards something positive. Anger can be good, it motivates you, not to cure your child, but use it to advocate for him. Learn acceptance... that is the best gift Autism can give you. It is a struggle everyday to see things through my son's eyes, but it is wonderful when I can understand how he is feeling. Again, while it isn't easy, it is amazing and you can do it. 

Let's reach out to the new parents going through what we have once gone through ourselves. I welcome Jennifer into a part of my life, a neighbor on my sometimes lonely planet and as a mom who can understand. Hang in there. It is a long road and a process that seemingly never ends, but as you move beyond the grief you can see the rainbow. Posting the blog post about your son was one more step towards acceptance. I am here to chat anytime and I am sending hugs to you and your family. I would also suggest that you find a local Autism Spectrum Support Group. This is a very helpful support to have. 

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