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| This is my dad wrestling with a Vietnamese child |
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| Posing in a tree |
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| Medics with a child |
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| This is my dad asleep with a baby. I don't think I ever met this child but I now know that he had other children aside from us. |
I guess I should update you as to what has been progressing or in better terms regressing. Chucky Cheese has been struggling a lot. It started with his physical therapist calling about concerns and me being the Mama Bear, getting protective. I almost went down the path of denial but.. that would not have helped so I pulled myself together and brought him back to the doctor's. As you might have read in previous posts here, here and here, he has had some muscle issues going on. This problem has now exasperated into a huge problem. It has gone beyond the typical "autism regression" and is portraying itself as a Muscle Atrophy now. Boy. that sounds pleasant eh? Charles' right leg is visually bowing in. It curves at the hip, at the knee and at the ankle. He is losing complete function of his right leg and has much difficulty doing normal everyday tasks let alone regular six year old boy stuff. I find him constantly falling and he is so unsteady. He is even having trouble riding his bike which I was proud to say that he mastered last summer. I have brought him to the pediatrician, neuro-developmental pediatrician, neurologist, orthopedic, urologist, and a neurosurgeon. Why so many you may ask? My son is currently a medical mystery. No one can figure it out.
He went for a 2 hour MRI which showed a syrinx, cyst of fluid, on his spinal cord from T6 - T10. That is a pretty large span and at its widest point measures 5 mm in diameter. Doesn't sound so big but... Your spinal cord isn't all that huge. He did amazing through the procedure and woke up in a pretty decent mood.
Hello again from Wacky Wonderful Wednesday.
My third child was born in August 2004. We call him Buddy and he is Chipmunk's Irish twin. He was born on the same day, a year later. He had speech delays along with a lot of sensory problems. I might add that similar to his oldest sister he also had the issues with his fingers although his was actually one bone and not just joined skin. His was separated at 8 months and again at 1 year. This was done twice for him because as I called him"My Little Houdini", at 8 months old continually pulled the casts off his hands with his feet which caused them to web during healing. Buddy received early intervention until the age of three and currently receives Occupational therapy in school for his hands. He remains a very demanding child with a lot of sensitivities to sounds and touch. He has ADHD and is being evaluated for ASD.
My last child, was born in March of 2006. I may refer to him as either Chucky or Chucky Cheese depending on the circumstances and his mood. LOL He was named after my father whom he never met. He is an amazing young man but very challenging. He has High Functioning Autism, Sensory Processing Disorder, Hypotonia, and an anxiety disorder. While he can now speak, is potty trained and able to do simple one step tasks he struggles to get through each day. Therefore my other children also struggle too. Chucky Cheese was born 3 weeks early at a healthy 7 lb. 12.9oz. He failed to meet any milestones on time. He couldn't hold his head up, rarely smiled at you, and didn't coo. The only vocalization out of my son was screaming. He was most content sitting in his swing rocking side to side. Early intervention started when he was 8 months old. He remains in a special needs school and is functioning at a two and a half year level. He has taught me a lot in his four years. Patience must be the first and well, unconditional love is right on top too. 
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