Showing posts with label small things saturday. Show all posts
Showing posts with label small things saturday. Show all posts

Monday, January 3, 2011

Communication and the iPad

1/03/2011 0 Comments
The holidays have come and gone and it was the first day back to school for my children. Boy, was I relieved!!! I hate to say that, but really I had had my fill. The last three days there was nothing but screaming. Does this screaming drive anybody else insane? I am not sure if it was an aftermath of over stimulation or just rough days but I do know that although my sister dyed my hair on New Years eve I think I have already acquired gray hair. I know for a fact there was at least one gray.


I decided I needed to get a program on Charlie's I Pad so he could communicate better. That was not an easy job. To start I had many plans for my day today. I wanted to thoroughly mop the kitchen floor, scrub the bathroom down, because I have boys and they are disgusting, and laundry. Of these things I only swept the kitchen and living room and did laundry. The rest of my day was spent on the phone with doctors about Jacob, who by the way, came back with a normal EEG. I am not sure I understand how but I am waiting to hear from the doctor to find out where we go with this now.


Then I did the unspeakable, I sat in front of my computer to find that program I was talking about. I heard that the Grace program was great and decided to give it a try but it just isn't what he needs. Unfortunately, that was a forty dollar program that he won't use. I am not putting down the app in any way. I feel that it would have been a wonderful application for my son about a year ago when he was almost nonverbal. Now, my son speaks so I wanted a program that would speak as he touched the picture, thus giving him the visual and auditory process. I tried Tap to Talk which presents itself as a free app. This program, when I reviewed it on itunes, said it was fully customizable if you went to their site. What they didn't mention was the $99.00 cost to do this. I know I cant expect much for a free app but, I really stretched my pocket buying the ipad and I can't afford to drop a ton of money into apps.


I feel I need to address the Grace App for iPhone, iTouch and iPad- Picture Exchange for Non-Verbal People. It is as it says for non-verbal people. It is a wonderful app. I would recommend it for any parent of a non-verbal child. A couple years ago, it would have worked wonderfully for me. I imagine it would have been better when I was carrying around a bulky folder with pec cards. I know many parents can agree..that was a pain in the ass. My son now however seemed to look at the program and assume that he could just point and get what he wanted without words. I tried redirecting him but it didn't work. He just got angry. It threw him into a melt.


Chucky Cheese seems to parrot a lot. He has the language but he can't seem to put his thoughts into words when he needs something or is injured. I felt a program that verbally said what he wanted might be better. I tried MyTalkMobile and found it to be successful for us. I think each family has to find what works for them.


This program works for me and it was a free app. This app does also have a subscription price but it allows you to customize for free for 30 days. This allows you ample time to see if it is something you would consider investing in. Another positive is that anything you customize before your trial ends stays with you so, even if you cannot subscribe you remain with a functional communication device. Te subscription is to have access to the workspace so you can farther customize your app. However you can customize some of it in the app itself. I am hoping I can figure out a way to afford the subscription to this program. Charlie is constantly telling me, "You know" or "Me show" so this allows that and he does, as I projected, repeat what he wants after he hears it.


It took a little while to prepare the app on his iPad but once I understood how, it was easy peasy. I plan on having him record himself saying his name, address, phone number, age, and birthday. I think he will think that is awesome. Oh, awesome is his new word. Trust me, it is better than his last new word. I do have to warn you about how damn annoying it can be when they decide to constantly tap the same button continuously even after you told them they cannot have what they wanted. For instance my son, after cooking dinner, was insistent that he wanted a hamburger with a smoothie. Hmmm.... I didn't have that and that was using tap to talk and it was not customizable. This was one of the reasons I was so diligent on finding an app that would work for him.


I am hoping that this will help my days be a little quieter although not much, but it is the small things that count the most. At least that is how I see it, that one hot cup of coffee you get once a month, if that, or the smile as they ask for a hug. Another moment I must add is the fact that my son was sleigh riding with his sister today and amazingly it was uneventful. The other day it ended in a 20 min meltdown. Thank god for the small things cause they keep me going!!
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Saturday, December 11, 2010

Small Things Saturday

12/11/2010 5 Comments




Another week of small things Saturday. I am having a difficult time even thinking cause I am still really sick. But, I did go to the doctors!! Yeah me!!! It is a virus or so they say. But, he gave me a strong antibiotic just to be safe. When I went to pick it up though, the pharmacy computers were down so, I still haven't gotten my meds. I cannot breathe well and I am dizzy whenever I move. Sounds fun eh? On a positive note, whatever that is, Charlie, aka Bug-a Boo,  seems to have calmed down now. I don't know what triggered him but he was really intense last week. He met my doctor yesterday and while he wouldn't look directly at him and couldn't stay still, he did ask him if he fixed his Mommy and if he made me better. My daughter of course had to ask if I was contagious. LOL... Go figure. When the doctor said yes, she took three steps away from me. Gotta love our kiddos. 
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Saturday, December 4, 2010

It is the Small Things...

12/04/2010 4 Comments
With the week I have had I think it is beneficial for my sanity to participate in this wonderful blog hop that I discovered on Four Plus an Angel. Her site is written by a mom who has a teenager on the spectrum. She seems to keep it real and I enjoy reading her posts. She has suffered the unspeakable loss of one of her triplets and has experienced the joy of a new baby after the loss of one. She is a very strong woman and I am inspired by her strength.  After joining a group for moms raising children with special needs, they were discussing how much we treasure the small things in life. I know as a parent of special needs I can really relate. So Jen from Want a Peanut, Chris from A Crazy Kind of Faith, Amanda from Life is a Spectrum, Ginny from Lemon Drop Pie, Melody from My Twisted Stitches, Kelly from Home of Chaos and her started this blog hop. I am going to jump on board because I think that it is helpful to try to recognize the accomplishments throughout the week. A lot of parents tend to overlook, or take for granted things like a hug, kiss, or maybe even just a smile. Here we all can celebrate and share these moments with each other. 
CLL0_000000211a2Image by Frozen in Time Photographers via Flickr

My moment this week would have to be when my son was having a major melt down. You know those days that you just want to crawl in a hole and forget about everything. I found myself shaking and I was really trying to be calm. Imagine the sweet young man pictured here screaming and red faced flying at me hitting me. What was the cause of all of it? He asked for Ovaltine (which he never wants), and I didn't have any. Damn guess I am not super mom eh? It was early morning and he had to go to school. He wasn't getting ready and had been screaming for almost a half hour. I tried offering solutions and options but he was not calming. It just made him angrier. Which made me nervous. Why, would I be nervous? He only broke my nose, has bruised my ribs and left numerous marks on me from his teeth and nails. He has gotten so much better, or at least he had. 


Well, I think the best part of my week was after he had started to calm down and I said,"Good job Charlie, you chose juice instead." He then told me,"No talk to me, Me bad mood!!" That was my big moment and you may ask why? Are you curious? My son cannot express his feeling very well. He knows sad but never has he said anything about being in a bad mood. While it is possible that he picked it up from Mommy, thats ok cause it fit the situation right. I instantly wanted to do a happy dance.





So, What is your Small Thing Saturday?
Come on share it!! I want to know really!!!!



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