Needing to post a brief update. I am sorry I havent blogged but with the holidays and doctors I havent been able to blog. Charlie's blood test came back negative for everything. He does have a Vitamin D and Calcium deficit and we are supplementing for that. I think this is pretty good news right?
I think it is a tug of war kinda result. While he does not test for Muscular Dystrophy, we still have no answers about what is causing so much regression. It could be the vitamins but.. these issues have been around since he was a baby. So, off to different specialists to try to find some answers. I just want to be able to help him.
My sister gave me a Sunshine award... LMAO.. Me? Full of sunshine? I feel like lately, I have had nothing but complaints and bad results but... I do try to have a positive note and to look at a brighter side of the situation. When we went for the testings I also got tested. They ran genetic testing on me and I was shocked to find out that I have the exact deletion as my son Buddy.
I have lived for thirty three umm... wait, I think thirty three it may thirty two but whatever, years with Cri Du Chat which wasnt too bad. But, with that I got nervous, called the doctor, insisted on scheduling regular appointments. I told him to check my heart and amazingly with all my stress my blood pressure was 88/60!!! I know sounds too good to be true right? Wait, that was with 5 cups of coffee and a two block walk to their office. That concerned him a bit but he says we will keep an eye on it. I have always had low blood pressure which some would die for. For me, it sucks, for me, it causes me to get dizzy. It makes me sleepy.
I walked into the office, wanting to quit smoking. I need to live forever!! The doctor said he can't advise me to quit so quickly and to take my time. He won't prescribe any meds for it because he says it will increase my anxiety and he doesn't know how I have been managing thus far. So I asked what should I do? He said I am prescribing Ativan and Lexapro and to keep minimizing my daily cigarette intake. He gave me a referral to a geneticist and also wants to see me in 2 weeks.
I guess now, my sister's Sunshine Award will be truly great because even if I try not to be happy I have happy pills. LOL Now onto the questions!!
I think it is a tug of war kinda result. While he does not test for Muscular Dystrophy, we still have no answers about what is causing so much regression. It could be the vitamins but.. these issues have been around since he was a baby. So, off to different specialists to try to find some answers. I just want to be able to help him.
My sister gave me a Sunshine award... LMAO.. Me? Full of sunshine? I feel like lately, I have had nothing but complaints and bad results but... I do try to have a positive note and to look at a brighter side of the situation. When we went for the testings I also got tested. They ran genetic testing on me and I was shocked to find out that I have the exact deletion as my son Buddy.
I have lived for thirty three umm... wait, I think thirty three it may thirty two but whatever, years with Cri Du Chat which wasnt too bad. But, with that I got nervous, called the doctor, insisted on scheduling regular appointments. I told him to check my heart and amazingly with all my stress my blood pressure was 88/60!!! I know sounds too good to be true right? Wait, that was with 5 cups of coffee and a two block walk to their office. That concerned him a bit but he says we will keep an eye on it. I have always had low blood pressure which some would die for. For me, it sucks, for me, it causes me to get dizzy. It makes me sleepy.
I walked into the office, wanting to quit smoking. I need to live forever!! The doctor said he can't advise me to quit so quickly and to take my time. He won't prescribe any meds for it because he says it will increase my anxiety and he doesn't know how I have been managing thus far. So I asked what should I do? He said I am prescribing Ativan and Lexapro and to keep minimizing my daily cigarette intake. He gave me a referral to a geneticist and also wants to see me in 2 weeks.
I guess now, my sister's Sunshine Award will be truly great because even if I try not to be happy I have happy pills. LOL Now onto the questions!!
Favorite Color? Blue
Favorite Animal? Horse
Favorite Number? 0- 0 housework, 0 children, 0 stress, at least for a day
Favorite drink? Jack Daniels
Facebook or Twitter? I love twitter but facebook is a must have for me.
My passion? Photography
Giving or Getting Presents? I like giving presents!!!
Favorite Day? Any day that goes by with a minimal amount of screaming or a day I can enjoy a cup of coffee while it is still hot!!
Favorite Flower? Lilacs are my favorite!!!
And last but not least, Thank you Bella, for the award! Now to pass it on!
Holly's House - I love this blog as she is very down to earth and we share the common bond of special needs parenting. She also addresses some very important topics and keeps it humorous.
Reflections and Renegades - This is another blog I follow and feel needs a little sunshine. She talks about parenting while struggling through depression. I too have been down this road and while I may not be depressed I can relate to many of her feelings.
Dysfunctional Supermom- I love this blog because it always makes me crack a smile, well sometimes I laugh myself to tears. She is an amazing author.
2 comments:
Sorry about the bad news. Happy about the good news. Maybe you haven't been full of sunshiny news lately but that just means you could use a little sunshine. Glad i could send some your way.
Btw, response is spelled wrong I'n your comment section. It should be response.
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